Publicado: Jan 23, 2008
Por: Monklady
Duracion: 4:8
I loved to travel the world in my wheelchair....the more dangerous it was, the better I liked it. This is me filmed during a programme covering my life and the difficulties faced as a wheelchair using mother who has a big spirit of adventure because of her M.S. and peoples attitudes towards it. The film says it all really - enjoy! Let me apologise for the lip-synch problem, try as I might, I cannot get the two matched up.
Canal: People
Tags: disabled india ms multiple sclerosis travel wheelchair
Calificacion: 5.00 (9 votos) Reproducciones: 1523' favoriteCount='10 Comentarios: 8
7mumfred7 Escribio:
Jan 23, 2008 - Hi - have you seen the videos on YouTube about Tysabri infusions ? It helped "vbeachy" (Vern) enormously, also look for the director "schubfrei" and "laurenvparrott". I think you may be able to get reimbursed completely over there in the UK now. I do agree that is one truly hairy way to launch your way out of the house :o)
Monklady Escribio:
Jan 24, 2008 - Thank you for the information about Tysabri, I had no idea it was now available in the UK. Sadly, it is not available for those who are 'Chronic progressive' like me. I do not have any remissions so the NHS won't help.
7mumfred7 Escribio:
Jan 24, 2008 - I see now. Well may I suggest to keep an eye for new trials ? The landscape is changing quickly, hopefully they will make even more progress. Otherwise I am a little inspired by your fortitude. Travelling the world - what other countries have you been to ? I am surprised you went to India where it is so hot.
qualisarx Escribio:
Feb 23, 2008 - It is a horrible disease that is certain. You are right about regrets and I agree with you about the sensationalism of newspapers. Hopefully there will be a cure eventually despite the governments. I have RRMS and I can still walk barely. I can only imagine the uphevals this must and is still causing you.
4mytube8 Escribio:
Mar 31, 2008 - You are a very brave lady, I am glad you are doing all you can to enjoy life and not let it get you down. Keep it up.
shiquitatw Escribio:
May 3, 2008 - I really love this video,I have MS and the way that you put things really makes me look at things in a new light.When you said that your phone doesn't ring anymore that brought me to tears because that is the same thing that happen to me.When you are no use to people,they have no time.Sometimes I think that God allowed me to get MS so that I could take care of myself and put myself first instead of everyone else.Thanks for sharing your story.
Monklady Escribio:
May 9, 2008 - Thank you for your very kind words. Having M.S. teaches us so much more about life, when we are forced to go slower we see far more...both the good and the bad. You are right about God allowing us to get M.S., we obviously needed to learn some things - and to teach others from our experiences.
dmplaura Escribio:
Jun 1, 2008 - "Who suffers from Multiple Sclerosis. I don't suffer from it. My family do." Well said. Great video.
Monklady Escribio:
Jun 2, 2008 - Thank you for your kind comment.
Sefardisafran Escribio:
Jun 15, 2008 - Well said, you have MS (me too and very Progressive)and try to keep as free as possible. Good for you! Sefardisafran Hoboken NJ Somewhere in this Galaxy
lewdite Escribio:
Jan 23, 2008 - Having watched your father's speech about a candle, I am provoked to say that you are "a flame off the old wick."